The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease (KINDLE)
- Hardcover
- 288
- The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease
- Alice Wexler
- English
- 24 August 2018
- 9780300105025
Alice Wexler Õ 5 Read & Download
Alice Wexler Õ 5 Read & Download review è PDF, eBook or Kindle ePUB free Õ Alice Wexler Free download The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease æ PDF, eBook or Kindle ePUB free Tarting with the life of Phebe Hedges Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity disability stigma and medical knowledge among ordinary people as well as scientists and physicians She addresses these themes through three overlapping stories the lives of a nineteenth century family once said to belong to the disease”; the emergence of. This book focuses on Huntington s Disease in the Eastern US with forays into historical accounts of the disease from antiuity etc It also focuses on the social effects the disease had on families broadly from the 1790s to the current day with special attention paid to the effect of the eugenics movement
review è PDF, eBook or Kindle ePUB free Õ Alice Wexler
Alice Wexler Õ 5 Read & Download review è PDF, eBook or Kindle ePUB free Õ Alice Wexler Free download The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease æ PDF, eBook or Kindle ePUB free When Phebe Hedges a woman in East Hampton New York walked into the sea in 1806 she made visible the historical experience of a family affected by the dreaded disorder of movement mind and mood her neighbors called StVitus's dance Doctors later spoke of Huntington’s chorea and today it is known as Huntington's disease This book is the first history of Huntington’s in America S. Very interesting to get the history of Huntington s disease and background behind why George Huntington came to see a connection between the symptoms from observing those in his home townhis father s practiceI knocked off a star as it took me a while to get into it as there is so much to digest To be fair though Perhaps I found it hard to read initially where my personal involvement with Huntington s was making it overwhelming at times I needed to take a breather as it was so emotionally draining feeling the sorrow for those who were treated in previous generations No one knew any better but I felt for people I had never met knowing how hard it is to cope with HD even in this day and ageI went away from the book for a little while then came back to it with a revived interest and was able to finish it I m very glad I gave it another go and was able to be enlightened as the story does need to be read
Free download The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease
Alice Wexler Õ 5 Read & Download review è PDF, eBook or Kindle ePUB free Õ Alice Wexler Free download The Woman Who Walked Into the Sea Three Stories in the Making of a Modern Genetic Disease æ PDF, eBook or Kindle ePUB free Huntington’s chorea as a clinical entity; and the early twentieth century transformation of this disorder into a cautionary eugenics tale In our own era of expanding genetic technologies this history offers insights into the social contexts of medical and scientific knowledge as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. This book wasn t uite what I wanted it to be I think the book I wanted may be the author s first book on Huntington s which she hints was autobiographicalIt was still reasonably interesting and it made me re examine my belief that people with Huntington s shouldn t have kidsIt was interesting to me that the author cites feminism as an inspiration in the writing of the book it was sometimes jarring that masculinity is cited as a character aspiration in a fairly neutral way and male is inserted in places